
Neck incision

Underbelly incision

Poor puppy just wants to lay down but can't quite figure it out with a big slice on his belly. :*(




I haven't been around the computer to be able to post two very special birthday's that were on February 5th. Soooo....

I am about to do something that I said I would never do in blogland. I am going to post the same picture more than once in one post. I never understood why that was done, I mean- I saw the picture the first time. LOL.
So, it snowed on Friday/Saturday and Scott made a snow run off the back deck. Our neighbors came over with their girls to sled. The kids were having a lot of fun making the Mommy's and Daddy's cater to their fun. The kids would take turns going one by one, but then we started having them go tandem. Ethan went with Rachel and they both had the biggest smiles afterward.

So, why did I tear up tonight when I mentioned it at small group? Because we don't have play dates. It's just complicated...anywho. Our neighbors kids don't see that Ethan is different at all. I think that they may have asked a question like "Why doesn't Ethan talk?", but it has never been an issue. We give them an answer and they say "oh" and go about playing. If anything, they think that Ethan is pretty cool because he has a swing in his living room and a trampoline! :) When they play, they tend to play in their own corners so to speak- not necessarily together. Sunday, they played together.

They played together. They smiled together. They laughed together. They had fun together. And so it was captured- he was just one of the kids.
All around Facebook, people are posting their Urban Dictionary definitions of their name. I have decided to just do a blog post. LOL. So, whenever I need to make myself feel awesome, I can just come back to this post.
Urban Dictionary - Kristen
Slang for "most awesome girl ever"
usually extremely beautiful. can surprise you at what she can do. very outgoing. can be emotional at times, but mostly just wants to party!
Very hott girl that you won't seem to every forget about,amazing personality and great figure. {damn skippy!}
amazing
An amazing person, not likely to ever leave your thoughts, always to the be te only one on your mind . Incredibly beautiful, nice, smart, caring, and all-around great . Her eyes gleem with a radiance of a thousand stars, her lips draw you in, like magnets, her love is like life, without it, you surely cannot live.
being of extreme beauty, class, and creativity.
also happens to be pretty rad.
1. E-karma's Queen.
2. Extremely nice person.
3. Awesome
The girl who makes you want to be a better man. Shes incredibly smart, funny, and stunningly beautiful. You are often thankful for every second that she is a part of your life and lament the times that you arent talking to her because with her every second is like being in heaven.Often a girl with spunk that other girls fear.Hates drama usually and normally doesnt do well with guys who cheat.Loves to go out an party. Never doubt her cause shes always changing and you dont ever truely know what shes thinking.
My friend, Michele, posted the link to the following article on Facebook and I have to say that the author's opinions are pretty much to exactly my feelings. I find myself telling people how offensive the 'r' word is to me, but I also find myself not wanting to offend the offender. ?!?!?! I try to be the best advocate I can for Ethan and for those with special needs, but sometimes my words are not as on point as Ms. Liane Kupferber Carter. Please read.
The R Word
by: Liane Kupferberg Carter
http://www.huffingtonpost.com/liane-kupferberg-carter/the-r-word_b_443627.html
We were trying on hats at a department store counter when my childhood friend said it.
"I never know how to wear these," she said. "I'm such a fashion retard."
I was shocked. I said, "We don't use that word."
She turned red. "You're right. I am so sorry," she said.
And she was. Truly embarrassed. Not only because she is a kind person, but because I am the parent of a child with autism.
The thing is, she is about the last person I ever expected to hear it from. She is one of the smartest people I know, and I'm not talking about her Ivy League education. She's an active community volunteer. She works in soup kitchens and bakes her own bread. She's passionate about social justice, someone who thinks long and deeply about everything. She treats my son with unfailing compassion and respect, and has taught her two children to do the same.
So to hear the R word slip so automatically from her lips was as shocking as if she had taken off her clothes and danced naked in Times Square.
Recently my mother-in-law forwarded a joke that had obviously been making the rounds among her friends. It was a silly story about children who mistake words they hear, not worth repeating here. But the subject line of the email was "retarded grandparents." I took a deep breath. Then I clicked on "reply all" and wrote this message:
"For years I've received jokes like this and kept quiet, but one of my New Year's resolutions this year is to speak up, so here goes. As the parent of a developmentally disabled child, I find the use of the word "retarded" personally offensive. So-called jokes like these reinforce the discrimination and intolerance children like mine face daily. 'Retarded' is not a synonym for 'stupid.' It's time to retire the 'R' word from everyone's vocabulary."
My mother-in-law emailed back, "Actually I didn't even notice the title of the joke. But you are right about this."
Well yes, that's my point. No one notices. Not even the people who know and love my son. That's how ingrained that word is in our culture. It's a knee jerk reflex in people's vocabularies. No one else replied to my email. I imagine that many of her friends who received it probably felt sorry that my mother-in-law has a humorless prig for a daughter in law. And it's true. I am humorless when it comes to this.
People use the R word as an all purpose put down. It's hateful trash talk, the ultimate playground zinger. The Special Olympics has been campaigning aggressively against the word since the film Tropic Thunder, which introduced the term "Full Retard" to the cultural conversation, was released last year. Even President Obama has been guilty. Not of using the R word, but of viewing those with disabilities as something to joke about, when he told Jay Leno on "The Tonight Show" that his poor bowling performance was like "Special Olympics or something." (Obama later apologized for his remark.) Or Pulitzer Prize-winning author Thomas Friedman, during interviews on both CNN and "Charlie Rose", who repeatedly said that our involvement in Afghanistan "is like adopting a special needs baby." Just last week, White House Chief of Staff Rahm Emanuel was quoted using the phrase "f--ing retarded," in the Wall Street Journal.
I am not the first to write about this, and I won't be the last, either. I'm not trying to be the word police. And I know that if we banish this word from everyone's vocabulary, something equally noxious will probably take its place. But the malice behind this word is palpable and ugly and heart constricting. Do you think kids with intellectual disabilities don't know they are being put down when someone calls them that word? That they don't feel the insult and disdain?
The R word has been retired by medical and social service organizations. It's time everyone else does too. This isn't about political correctness. I am asking for no less than a basic cultural shift. People need to understand that the R word is as offensive to persons with intellectual disabilities as the N word is to the African American community. The old saw "sticks and stones will break my bones but words will never harm me" is patently untrue. Words do wound.
My sister posted this on her Facebook and I just, finally, got around to being able to watch it. It's a pretty awesome message. Enjoy.
I let Mary take my camera back to Africa a few weeks ago. The only memory card that Wal-Mart had was an 8GB card and I thought that would be great so she could take many, many pictures and also get video of the kids at Challenge Farm for me. I had no idea that this nice new card would be causing issues for me today.
Yesterday, after school, Ethan did something so wonderful that I ran over and got my camera off of Mary's desk. I was hoping and praying for a repeat of what he did.
Good News: He did it again and I got it on video!
Bad News: The video card is not compatible with my computer because it is a new high capacity card! :(
So, I will have to get a USB thingamabob in order to get the video off of my camera!
Ok, so Ethan climbed out of a mini-cage I had him in at school. It is typically the perimeter to the ball pit and I put him in there to keep from throwing the balls everywhere while Mary and I had a meeting about re-eval and he had his game plan and climbed out! This may not seem like a big deal to many, but I cried. Seriously, whenever he does new things, I cry- ESPECIALLY when I can see his wheels turning on HOW to do something. When I can see his thought process work, it's amazing!
I also got video of him laughing up a storm while playing with feet totally creepy, I know, but that is going to also have to wait, too. Man, I am so disappointed!
This Mama is so proud of her boy!
Bethany is at it again...finding a way to help out others. Leave a comment on her blog here and she will donate back to Haiti. You must leave the comment on Bethany's blog in order for her to send the $$$.
The devastation from the earthquake in Haiti is extreme.
140,000 people were killed.
1,000,000 people are homeless.
I have been reading the blog of a doctor from Minnesota that is in Haiti providing medical care for the injured. She and her medical team are in immediate need of the following:
Emergency medicine/trauma surgery PA (or similar skill set)
Orthopedic PA (or similar skill set)
Physical Therapist
If you know someone that may be qualified, please pass this information on to them immediately. They are looking to have these people flown into Haiti in two days from now.
Click here or here or here to read about their relief efforts.
I promise you will be inspired.
Or click here to see pictures taken by a Minnesota family that is currently living and serving in Haiti.
Amazing.
Or click here to read about the efforts of New Kids on the Block, the Wheelchair Foundation and others to send a plane to Haiti. Yes ... I ♥ NKOTB.
Two weeks ago, tomorrow, Ethan's favorite teacher and my dear friend embarked on her 11-day journey to Kitale, Kenya, Africa. Yes, Mary went to Challenge Farm without me, but I am so NOT bitter...nope, not at all!. We were all so excited for her adventure and for what God had in store for her, but eleven days is a long time for Bubs to be away from Mary. So, we made it a point to go to the airport to greet her back HOME! Ethan got Mary some "Welcome Back" balloons and waited patiently for her flight to come in.
I recently sent off a bunch of pre-printed thank you cards that I had printed from Shutterfly. It came to me today that some people may think that the thank you was impersonal because it was pre-printed. Since I have lived in the South, I have noticed that people around here take their thank you card's seriously! If you went to a wedding and brought a gift, you better be seeing that thank you card in the mail the week after the honeymoon, or else you are an ungrateful receiver! I have always had good intentions about sending thank you card's, but they usually end up on the dining table- some even addressed and only needing a stamp!
I was NOT going to let everyone who contributed to our Christmas go without a thank you of some kind. I put pictures of Ethan on Christmas Day on the front and inside, along with a personal note. The personal note is what was printed from the company. This is what I fear people will feel is impersonal because it wasn't handwritten. I hope this isn't the case, but it was on my mind because I don't talk about my RA {rheumatoid arthritis} much. Anywho, I cannot handwrite anything- without pain- beyond a post-it note. I wish that I could personally write out every note, but my hands simply won't let me. And, that's why I have to count on the wonderful new technology of pre-printed thank you notes.
Ethan's eating sucks lately. We don't know if it's because Mary's been gone or what, but Ethan does not want to eat anything at home unless it is oatmeal or applesauce. We always puree him food that we are eating and he loves it. One of his favorite meals is Mexican, but refused he that too. I tell you, if it were not for the fact that he drinks 3-4 Nutren Junior's a day, he would become frail again...FAST.
What is so confusing is that school tells us that he eats great at school! What the French is that about? This is when having a child who is non-verbal really blows.
As a Mommy, what is your first reaction when your child hurts themselves and gets an owie? Mine is to try and comfort/kiss the owie and make it better...you know, the whole "Let Mommy kiss it and make it better" approach? Yeah, well- I try that and Ethan rejects it. What gives? He looks at me like he wants me to make it better but then he won't let me touch or see the boo boo. It's kind of heartbreaking. I always jump to his aid when he slips and I can tell that something hurts, but he always pushes me away. Is it so much to ask for a Mama to be able to make her baby feel better? I just know that when Ethan shows pain, it REALLY hurts because his pain tolerance is so high. I hate to not try and comfort him since he just rejects it, but sometimes this Mama is a little sensitive and would just really love it if she felt needed.
I get FarmVille app requests on Facebook all the time and every single request gets ignored {nuttin' personal}. I guess virtual farming brings much joy to many people, including my Mom, but I simply don't have the time to get involved with it, and I am certainly not going to be updating my status to have someone else water my crops. It's just not for me. This morning, I heard a Farmville rap and laughed so hard. I found the video on YouTube for everyone's mutual enjoyment. :)
Scott took Ethan in for his second follow-up for the infection in E's thumb and the infection was not MRSA! YAY! It tested positive for strep. I don't know the specifics, just that it was strep and not MRSA. :) The thumb looks SO much better and we took off the bandaging last night, so Ethan is much happier to have the use of both of his hands again. The doctor is switching the antibiotic over to amoxicillan, which Ethan loves so we shouldn't have such a hard time getting the meds in him anymore.
Thanks to all who prayed for Bubs.
I will disclaim that this post will talk about bodily function, so if that grosses you out- put on your big girl panties or big boy chonies and suck it up...this is an important topic...for me anyway.
I know that I have written about playdates before. My previous posts may have seemed to be more of a pity party, and maybe they were, but this is not a pity party post. I'm actually quite upset about this. I am upset for my friend and I am upset for her child. Let me essplain...no, I'll sum up.
Friend {Betty} and child with Down syndrome {Jay} go to supposed Friend's house for playdate. Betty's friend's daughter does not have Ds. Jay is not potty trained. Jay has a poop accident and a piece of Friend's furniture is hit. Friend proceeds to gross out and practically cry, all while making Betty feel like her child is gross. Betty apologizes profusely. Instead of giving Betty a towel to lay Jay on to change his diaper and clothes, Friend provided a plastic bag.
Ok, first off, the plastic bag thing is offensive to me. To give your friend a plastic bag to lay her child on?!!? Really? Second, whether you have a child with special needs or not, did your kid NEVER have an accident? Are you psychic and know when your kid is going to have a poop that overflows the diaper? Do you walk around with a barf bucket for that chance that your kids might projectile vomit? Are you always there at that exact moment your kid sneezes and shoots snot across the room? No? I didn't think so. Are these things gross? Sure. Is the child gross because those things happen? NO! Is the parent irresponsible because they didn't know those things would happen? NO! Listen Friend, this is part of having kids. If you can't handle bodily function from other kids, then do not invite them over for playdates and proceed to make your guests feel awful. And, by the way Friend...Jay is not stupid. You think that he didn't understand your insinuations that he is gross?!?! Shame on you. And one more thing, Friend... Betty will not be coming over anymore- you have insulted her and Jay for the last time.
Phew, ok. Now this leads into something that I struggle with. I am proud of Betty for having a playdate outside of the special needs circle! That's awesome and I think it is something that we all want for our angels. But, when things like this happen, do we retreat back into a comfort zone of only being around playdates where someone "gets it"? Then, for those of us with kids with complex needs- even beyond the typical child with Ds, what do we do?
Ideas? Suggestions?
Remember Bethany's motivating post regarding C25K with said motivation being a $100 for new running shoes and an iPod Shuffle??? Well, her daughter Payton {AKA: Chicky} drew the winner! Take a look! I was crying watching her because I am just so proud of her! Watch her as she pulls the paper and so beautifully opens it to display the name back to her Mama holding the camera. Great job, Chicky!
THANK YOU, CHICKY!!! :)
Now, you have to watch the next video too! Winner, take two! This time, Addison {AKA: Nika} did the honors.
This sleep deprived Mama is very happy today! :) Thanks Bethany!
On Wednesday, Scott noticed a very small blister on Ethan's left thumb. We couldn't really figure out where it would have come from. Did he burn it somehow? Was he bitten by an insect/spider? He didn't cry during the night, so it is still a mystery when this happened. By yesterday morning, the blister had grown to cover most of his little thumb and the fluid inside had a yellowish tint. I called the doctor and they agreed that he needed to be seen.
When I got to school to pick Ethan up, his thumb was so red and swollen and the blister was even bigger and nastier looking. We got to the doctor and he wanted to aspirate some of the fluid out and have it cultured. MRSA was mentioned...again. {I am really tired of hearing that term!} After the aspiration, his hand was completely bandaged to keep him from putting the hand in his mouth and to, hopefully, give him some time to heal. He hated having the dressing put on, but otherwise didn't seem to be bothered by it. We were given a prescription and told to come back today so they could check it. {Apparently, if it is MRSA, it has a higher likelihood of spreading to the bone when it is on a finger so they wanted to see if the anitibiotics were working}
Last night. Oy vey. Ugh. NO sleep. Ethan was miserable. I gave him Tylenol to help, but it didn't seem to because this sweet boy of mine was up ALL NIGHT LONG! Most of it crying, too. Poor Bubs. We couldn't comfort him for anything. Usually, if we put him in our bed, he will go right to sleep. Well, he wanted to, but just couldn't. It was so pitiful. Then, he started getting mean. By 3am, Scott went and slept with him in Ethan's room. So, we all got a couple hours of sleep...maybe.
Today at the checkup, the dressing was removed and the blister had refilled with fluid. It also spread slightly, but the swelling and redness was slightly better so they decided to not redrain it. We did a Hibicleanse soak and re-dressed it. I did notice more blisters on his fingers, but as of right now the doctor thinks they are from friction of Ethan moving his fingers under the dressing. When we re-dressed it, we put barriers in between each finger to help with that.
The new dressing has a beige color to it and when he had his jacket on, it looked like he didn't have a hand! :( He is adjusting to only being able to use one hand though. Smart kid.
I have to change the dressing over the weekend and look for any changes. The culture won't be back until this weekend and we have to go back again on Monday for another recheck. Oh, and the doctor thinks that this came from a bite of some sort. Fun times.
I am so upset. I caught a cold and it has gone bad FAST. Can't breathe, coughing, sore throat, earache = no day 2 of C25K. :( I opted to do some Wii Fit Plus activities that worked my calf muscles, so I was still doing something besides sitting on the couch. Haha. I am still committed, though. Don't count me out!
I did it. I completed Day One of Week One. I was completely anxious about running in the cold and then Mary told me that her apartment complex has a workout room with a treadmill. SCORE! I was lucky to be the only one in the room at the time. It wasn't bad at all. I made sure to walk for about five minutes, stop and stretch, and then get into the program. After it was over, I spent a fair amount of time stretching some more. I am so afraid of re-injuring my calves....
This is for my Mom so she knows where in North Carolina we are. NC is a very wide state, but a short one, so it is going to take us about the same time to get to Nashville, TN as to get to Baltimore, MD. We are an hour from the mountains and close to 4 hours from the beach. Hope that big star I added helps you when you watch our weather. :) xoxo
I don't usually ask for anything for my birthday, but this year I have a few simple wishes:
My grandmother, Mom, had hip replacement surgery today and yesterday was her birthday. My internal calendar is off and I didn't call until today to only find her about to be wheeled off to surgery! I felt and still feel horrible! As my sister, Kamrin, sent me text messages to update me, she also sent pictures of my Aunt Bitsy, Aunt Shell, Grandfather {Dad}, and my cousin Danny. It is one of those things that makes it so hard to be so far away. I would have been in that waiting room along with the rest of the family. My sister, in addition to her duties plugging out romance novels, has a day job. She is a reporter for her local newspaper and also has her own column- Stuff 'N Nonsense. Kim recently wrote her column surrounding the circumstances surrounding our family and I wanted to share with you. I love you, Kim.
http://www.oakdaleleader.com/news/article/1248/
Ethan's walking continues to improve daily, but one thing that he was not grasping was that he could get places quicker on his feet rather than crawling. He also wasn't getting exactly how to get up from the middle of the floor unassisted. Well, over the past few days he has started to become a master! We have caught him once or twice before, but he has been pretty consistent the past few days! This is so exciting for us! Oh goodness, let the running begin!!! :)
Ethan has a very lovely habit lately of proving his Mama wrong...My only concern about having presents under the tree was that Ethan would be wanting to throw the boxes everywhere. He had yet to have any desire whatsoever to open a present or even to see what was inside. He would get more excited about the tissue paper or the box versus the actual gift {reminds me of Daryl Hannah in Splash when Tom Hanks gives her a gift and she thinks the box is the most beautiful thing she has ever seen! haha.}. Not this year, my friends.
Now, Ethan thinks that he can open gifts everyday. I was out of the room the other day to find that he had opened another couple presents! So, now a phrase that is heard multiple times per day is: It's NOT Christmas yet, Ethan! You have to wait!