Well...

Here we go again...

High fever, convulsions, cloudy chest x-ray...We will do another CT in the morning.

Ethan had another fever around 3 am, but Motrin took care of it and he hasn't had a high fever since. He is on Vancomyacin (big guns) and Fortaz. He's been in a semi-cheerful mood.

I just woke up from a nap so I feel a little more rejuvenated and I thought that I would come check in with those who care.

Thank you for caring.
All our love,
Kristen, Scott and Ethan
Rm. 907 (336-702-9907)

Sad and Funny- a little of both

See below for my post I made earlier today- before the observation of irony.

Tonight, while I was making dinner (a rare occasion!), Scott asked me "What happened to Ethan's hair?". I thought that he asked what happened to his hand. Long story short, Ethan's hair is falling out again. A huge chunk is missing from the back of his head. I talked to Jennifer (her daughter, Rachael also has Down sydrome & ALL) tonight because Rachael's hair fell out completely again a couple of months ago. She said that it started in patches but was completely gone by three days later. While this absolutely breaks my heart and I am trying to be strong about this because it is just hair AND we have been through this before AND I know it grows back, it is just another reminder that my little boy is fighting the fight of his life.


Now to end on a funny...Ethan really needs suspenders! When he really gets to moving around the floor, his pants tend to get pulled down. So, ladies and gentleman I present to you- Ethan Faulkner, President of the Future Plumbers of America!

Anniversary...

Today marks the 2nd year anniversary of the day we entered the beginning of some of our darkest days. It has been a long two years, but at the same time it has gone by extremely fast! We look forward to the day that this is all a distant memory.

Ethan has been doing very well. He finished up the Levaquin antibiotic last night, so this week is really going to be an interesting one. We pray that the fever demon stays far away and allows Ethan to continue to gain strength! I will take him in to clinic next week for counts and the follow-up chest x-ray. Fingers, toes, arms, legs, eyes- anything that can be crossed will be crossed that his lungs are free and clear of the pneumonia.

Scott built Ethan a walker out of PVC pipe. Very creative that Scotty boy (as Madison would say!). Ethan gets so excited with the praise that he receives when walking. 2006 will be the year that my baby boy walks!




Ethan will also get to see his Grampa on Wednesday! He hasn't seen Grampa in almost two years! My dad is coming in for a short visit so he can go and visit a friend in Lynchburg, VA which is only a few hours away from us. We look forward to our visit, even if it will be short!

That's it, I think...