Monday, June 01, 2009

Not exactly how we planned it…

Ethan was scheduled for a sleep-deprived EEG first thing Friday morning at 7:30.  This meant that we had to keep him up late Thursday night and get him up early Friday morning.  I don’t know why I say “we”, Scott didn’t even flinch at 4am when I had to get up to go and wake up the Boogs.  After the EEG, Ethan was scheduled for a MRA.  Both the EEG and MRA were set to be sedated which meant no food or drink after midnight the night before.

EEG

We were called back on time, which was nice.  The tech proceeds to say that they don’t have orders to do a sedated EEG.  I show her my form that says that he is in fact scheduled for sedation.  Doesn’t matter, she says.  She also says that if he is going to be sedated for the MRA, she really can’t sedate because you can’t do a “double sedation”.  Alrighty then…we just roll with it. 

Ethan put up a fight, of course, while the tech put the 20+ probes on his head.  But, once the test could get started, I put him in my lap, crossed his arms, and he fell asleep.  The tech said that it was a perfect EEG in terms of him being awake and then falling asleep. 

MRA

Ethan was given a shot of pentobarbital orally to help him sleep before, which worked, but as soon as they tried to put him on his back for the scan, he flipped out and they had to do an IV shot of Versed to be sedated.  May I add that it took SEVEN adults to hold down my sleep-deprived pentobarb-sedated child in order to get the IV in!

I was told that the MRA scan was only going to take 10 minutes, so imagine my concern when I woke up from my own little nap 45 minutes later to still no Ethan.  Shortly after I woke up, a nurse came in to tell me that there was a little complication…

After the scan was done and the IV had been removed, as Ethan was being wheeled back to our room, he decided to let his tongue roll back to the back of his throat and obstruct his airway.  Suddenly, his O2 sats went from99 to 63 and his lips turned blue.  He was taken back and given oxygen, put on a pulse ox and all was gravy.  But, because of what happened, they wanted to observe him for a while which meant that we were getting admitted into Day Hospital. Digital Pics 292

 Digital Pics 291

So, our day did not go as we had planned.  We spent our Friday in the hospital while under observation.  His sats never once dropped again and he did not need any other oxygen than room air.  Boy, was he drunk though when he finally woke up around 8:30pm!  LOL! 

We were finally released around 9:30pm.  I got him home, gave him a bath to get the paste from the EEG out of his hair, and then I had him sleep with me that night.  It was funny watching Senor Drunkard stumble around the floor.  I started to say he was a cheap drunk but then I thought of how much Friday cost, and then I had to say, “Yeah, not so much”. 

We were very lucky to have my friend, Karen, working at the hospital that day, so we had some great laughs throughout his stay thanks to her and our nurse, Gina.  Other visitors included:  Ms. Mary, Amy (BFFK), and Kim (US from HEMOC floor).  The time went by fast thanks to all of our visitors.  Ethan is one loved little boy!

Another added bonus was that I was able to have my most favorite sandwich for lunch and dinner:  Einstein Bros. Tasty Turkey.  YUMMMM!!!

Should have results soon… 

1 comment:

  1. Me again...Our children's hospital stopped using phenobarbital for sedation YEARS ago! About the same time that Angela was OD'd on it. I didn't think children's hospitals were using it for sedation AT ALL anymore! Scary! If he ever needs sedation again, make them use something else. In Angela's case, they couldn't get her to sleep, so they kept giving her 1/4 doses more, hoping it would kick in. Finally it did, so they took her back. About 1/2 way through a nurse came to get me, "Is her breathing usually raspy?" WTF??? Umm...they had suppressed her respiratory system! That hospital is connected via tunnel to the children's hospital. I told her to call the ER there and tell them I'm coming. Two nurses met us in the tunnel (which is reallllllllly long) about the same time Angela had stopped breathing! It was the most awful experience ever! No more phenobarital for sedation!

    ReplyDelete

It makes our day to "FEEL THE LOVE" ♥♥♥, leave a comment ☺