Wednesday, September 23, 2009

Just found something that brought me to tears

I just found a planner from 2004. I had forgotten all about this planner. Scott had started "journaling" day by day in the beginning and I took over towards the end...

Friday, February 13th

Ethan has fever @ 105.3
Found out Ethan has ALL
Did bone marrow check
Blood transfusion, IV's started
Decadron & Zantac

12:20am Get on plane to NC

02/14/04

Arrived in NC 9:30am
Arrived at hospital 1pm
Platelets
Decadron
Zantac

02/15/04

Decadron
Zantac

02/16/04

Spinal check for ALL
No cells
Spinal methotrexate
Bone marrow check
Platelets
Decadron
Zantac

02/17/04

Had port-a-cath put in
Started vincristine
Decadron
Zantac

02/18/04

Decadron
Zantac

02/19/04

Bad diaper rash
Decadron
Zantac

02/20/04

Had L-asparaginase shot
Decadron
Zantac
Went home!

02/21/04

Threw up
Made everyone sick
Decadron
Zantac

02/22/04

Decadron
Zantac

02/23/04

Came to clinic
Spinal check
Spinal methotrexate shot
L-asparaginase shot
Vincristine
Decadron
Zantac
Diflucan for rash

02/24/04

First night in house!
Decadron
Zantac
Diflucan

02/25/04

Decadron
Zantac
Diflucan

02/26/04

Clinic
L-asparaginase shot
platelets
Decadron
Zantac
Diflucan

02/27/04

Bad diaper rash
Diarrhea
No eating
Called Dr. @ 6:30pm
Shaky, eyes rolling
Called Dr. back @ 11:30pm
Decadron
Zantac
Diflucan

02/28/04

Got to ER @ 12:30am
Started IV antibiotics
Took blood
Got to room at 3:30am
Got morphine
Got to sleep @ 4:30am
Decadron
Zantac

02/29/04

Found out you have a blood infection = min. 10 day hospital stay
Decadron
Zantac
Diflucan

03/01/04

Decadron
Zantac
Diflucan
L-asparaginase shot
Vincristine

03/02/04

Started losing some hair
Decadron
Zantac
Diflucan
Hard times getting to sleep

03/03/04

Decadron
Zantac
Diflucan
Red blood transfusion
Found out that you are O- blood, we thought you were O+!!! {He is actually O+, O- is just universal blood}
Rough night sleeping again :(

03/04/04

Infection id'd as streptococcous pneumonia
Decadron
Zantac
Diflucan
L-asparaginase
Platelet count: 23

03/05/04

Chris turns 30!
Slept better!
Decadron
Zantac
Diflucan
Platelets still 23, other counts coming up

03/06/04

Decadron
Zantac
Diflucan

03/07/04

Decadron
Zantac
Diflucan
Counts still coming up slowly
Platelets up to 32!!
Blood in stool

03/08/04

Decadron
Zantac
Diflucan
Vincristine
Dr. McLean is keeping us here another week...
Platelets: 52!
WBC coming up very sloooowly

03/09/04

Decadron
Zantac
Diflucan
no nap
nurses call you "no nap Ethan"

03/10/04

Decadron
Zantac
Diflucan
no nap

03/11/04

Decadron
Zantac
Diflucan
Rachael came by to visit
Platelets up to 99!!!
Going home Sunday! WOOHOO!!! :-)
Mommy left the hospital for the first time to p/u Madison
Cousin Benjamin Justin born at 10:50pm, 7 lbs. 12 oz. 18 1/2 inches

03/12/04

Decadron
Zantac
Diflucan
T*Potts being watched for pre-eclampsia
Delaney Claire born 5:18pm via c-section, 4 lbs. 4 oz. 18 inches

03/13/04

Savannah turns 1!
Decadron
Zantac
Diflucan
Platelets 171!!!
Normal range! :-)

03/14/04

Aunt Kamrin turns *18*
Decadron
Zantac
Diflucan
Last antibiotic 8am
GOING HOME!

03/15/04

Clinic 8:30am
Bone Marrow - Sedation Suite

REMISSION!!!

03/22/04

Back to school- everyone missed you so much!!!

03/26/04

Methotrexate (MTX) infusion

03/27/04

MTX infusion

03/28/04

Go home

04/01/04

Go back to work - off early
-Clinic, rec'd blood/fluids

04/02/04

Stay home w/Daddy

04/11/04

Samantha's birthday
ER- viral infection, admitted

04/14/04

GO HOME!

04/16/04

Clinic - MTX canceled due to SEG's still too low

04/17-18/04

Good weekend!

04/22-23/04

MTX

04/24/04

Go home

04/25/04

Mouth sores form already :(
Stopped eating

04/26/04

Went to school - all you would drink was chocolate milk

04/27/04

Took you into clinic fearing your counts were low/dehydrated. They admitted you and started you on fluids.

04/28/04

Blood

05/02/04

Started TPN (nutrients in IV) since you still would not eat/drink

05/04/04

Ate pudding!!!! Yay!

04/06/04

Go home!

05/08/04

Gramma turns 50!
Auntie Ang comes to visit!

05/10/04

Counts up!

05/11/04

Take Ang back to CLT

05/12/04

WORK! SCHOOL! Great day!

05/13/04

Clinic 8:30am
LP 12pm
MTX 5pm

05/14/04

Fab Four Reunite!!! CZ, DD, & SLD CLT 7:35am...9:30am due to flight delay

05/15/04

GO HOME!

05/16/04

Mouth sores start

05/25/04

Ethan turns *3*!!!

06/03/04

MTX - 7pm
Kay Ann Sohn brings dinner

06/04/04

Aaron & Debbie Wilkins bring dinner

06/05/04

Allison, Jerry, Mogan, & Holden Barnes bring dinner

06/09/04

CA!!!

06/11/04

Aunt Kamrin's Graduation!

The end.

1 comment:

  1. This is Joyce. In a weird wonderful way, be happy you have the day to day summary. I so wish I had kept a running log with Sarah from the very beginning. It does help put everything in perspective, especially seeing those big huge letters REMISSION.

    ReplyDelete

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