I just found a planner from 2004. I had forgotten all about this planner. Scott had started "journaling" day by day in the beginning and I took over towards the end...
Friday, February 13th
Ethan has fever @ 105.3
Found out Ethan has ALL
Did bone marrow check
Blood transfusion, IV's started
Decadron & Zantac
12:20am Get on plane to NC
02/14/04
Arrived in NC 9:30am
Arrived at hospital 1pm
Platelets
Decadron
Zantac
02/15/04
Decadron
Zantac
02/16/04
Spinal check for ALL
No cells
Spinal methotrexate
Bone marrow check
Platelets
Decadron
Zantac
02/17/04
Had port-a-cath put in
Started vincristine
Decadron
Zantac
02/18/04
Decadron
Zantac
02/19/04
Bad diaper rash
Decadron
Zantac
02/20/04
Had L-asparaginase shot
Decadron
Zantac
Went home!
02/21/04
Threw up
Made everyone sick
Decadron
Zantac
02/22/04
Decadron
Zantac
02/23/04
Came to clinic
Spinal check
Spinal methotrexate shot
L-asparaginase shot
Vincristine
Decadron
Zantac
Diflucan for rash
02/24/04
First night in house!
Decadron
Zantac
Diflucan
02/25/04
Decadron
Zantac
Diflucan
02/26/04
Clinic
L-asparaginase shot
platelets
Decadron
Zantac
Diflucan
02/27/04
Bad diaper rash
Diarrhea
No eating
Called Dr. @ 6:30pm
Shaky, eyes rolling
Called Dr. back @ 11:30pm
Decadron
Zantac
Diflucan
02/28/04
Got to ER @ 12:30am
Started IV antibiotics
Took blood
Got to room at 3:30am
Got morphine
Got to sleep @ 4:30am
Decadron
Zantac
02/29/04
Found out you have a blood infection = min. 10 day hospital stay
Decadron
Zantac
Diflucan
03/01/04
Decadron
Zantac
Diflucan
L-asparaginase shot
Vincristine
03/02/04
Started losing some hair
Decadron
Zantac
Diflucan
Hard times getting to sleep
03/03/04
Decadron
Zantac
Diflucan
Red blood transfusion
Found out that you are O- blood, we thought you were O+!!! {He is actually O+, O- is just universal blood}
Rough night sleeping again :(
03/04/04
Infection id'd as streptococcous pneumonia
Decadron
Zantac
Diflucan
L-asparaginase
Platelet count: 23
03/05/04
Chris turns 30!
Slept better!
Decadron
Zantac
Diflucan
Platelets still 23, other counts coming up
03/06/04
Decadron
Zantac
Diflucan
03/07/04
Decadron
Zantac
Diflucan
Counts still coming up slowly
Platelets up to 32!!
Blood in stool
03/08/04
Decadron
Zantac
Diflucan
Vincristine
Dr. McLean is keeping us here another week...
Platelets: 52!
WBC coming up very sloooowly
03/09/04
Decadron
Zantac
Diflucan
no nap
nurses call you "no nap Ethan"
03/10/04
Decadron
Zantac
Diflucan
no nap
03/11/04
Decadron
Zantac
Diflucan
Rachael came by to visit
Platelets up to 99!!!
Going home Sunday! WOOHOO!!! :-)
Mommy left the hospital for the first time to p/u Madison
Cousin Benjamin Justin born at 10:50pm, 7 lbs. 12 oz. 18 1/2 inches
03/12/04
Decadron
Zantac
Diflucan
T*Potts being watched for pre-eclampsia
Delaney Claire born 5:18pm via c-section, 4 lbs. 4 oz. 18 inches
03/13/04
Savannah turns 1!
Decadron
Zantac
Diflucan
Platelets 171!!!
Normal range! :-)
03/14/04
Aunt Kamrin turns *18*
Decadron
Zantac
Diflucan
Last antibiotic 8am
GOING HOME!
03/15/04
Clinic 8:30am
Bone Marrow - Sedation Suite
REMISSION!!!
03/22/04
Back to school- everyone missed you so much!!!
03/26/04
Methotrexate (MTX) infusion
03/27/04
MTX infusion
03/28/04
Go home
04/01/04
Go back to work - off early
-Clinic, rec'd blood/fluids
04/02/04
Stay home w/Daddy
04/11/04
Samantha's birthday
ER- viral infection, admitted
04/14/04
GO HOME!
04/16/04
Clinic - MTX canceled due to SEG's still too low
04/17-18/04
Good weekend!
04/22-23/04
MTX
04/24/04
Go home
04/25/04
Mouth sores form already :(
Stopped eating
04/26/04
Went to school - all you would drink was chocolate milk
04/27/04
Took you into clinic fearing your counts were low/dehydrated. They admitted you and started you on fluids.
04/28/04
Blood
05/02/04
Started TPN (nutrients in IV) since you still would not eat/drink
05/04/04
Ate pudding!!!! Yay!
04/06/04
Go home!
05/08/04
Gramma turns 50!
Auntie Ang comes to visit!
05/10/04
Counts up!
05/11/04
Take Ang back to CLT
05/12/04
WORK! SCHOOL! Great day!
05/13/04
Clinic 8:30am
LP 12pm
MTX 5pm
05/14/04
Fab Four Reunite!!! CZ, DD, & SLD CLT 7:35am...9:30am due to flight delay
05/15/04
GO HOME!
05/16/04
Mouth sores start
05/25/04
Ethan turns *3*!!!
06/03/04
MTX - 7pm
Kay Ann Sohn brings dinner
06/04/04
Aaron & Debbie Wilkins bring dinner
06/05/04
Allison, Jerry, Mogan, & Holden Barnes bring dinner
06/09/04
CA!!!
06/11/04
Aunt Kamrin's Graduation!
The end.
Wednesday, September 23, 2009
Just found something that brought me to tears
at
2:10 PM
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This is Joyce. In a weird wonderful way, be happy you have the day to day summary. I so wish I had kept a running log with Sarah from the very beginning. It does help put everything in perspective, especially seeing those big huge letters REMISSION.
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