Tuesday, July 28, 2009

Feeling Isolated

For the past few weeks, it has totally hit me that we don't fit in anywhere. Everyone loves Ethan, OF COURSE, but that seems to be where it has ended. There have been times over this summer that it becomes painfully obvious as I see pictures and stories of get-togethers of all the kids out of school for the summer. Play dates. Park time. Swimming.

We are not part of any of it. Honestly, we just probably wouldn't fit in anyway. Ethan is not going to go running around a park with other kids his age- or period for that matter. He's not going to talk either and other kids are not going to necessarily understand why, yet.

I can't remember the last birthday party Ethan was invited to (not including Madison or Delaney). He's just not thought of to be included in anything. That has been getting to me. Maybe our friends really aren't our friends- maybe they are just friendly peers. Then again, if he were invited to say a Young Chef's party, we wouldn't go anyway because it is not something that Ethan can do yet (we have tried).

Rambles. We are stuck in the middle. Neglected on one side, but likely unable to participate if included. It sucks to be stuck. It is very isolating.

12 comments:

  1. That sucks. I can only imagine. *hugs*

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  2. Anonymous1:12 PM

    You ARE loved, Kristen! Hang in there.
    Barbara

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  3. Jennifer Keiffer3:29 PM

    Kristen,

    I feel the same way. I hate that this is the way our lives become with a special needs child. Thinking of you-Jen Keiffer

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  4. Aww girl. Cry it out. Get it off your chest. Swear if you need to. LOL. I hope none of this stemmed from our gatherings the past few weekends ... we had fun!

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  5. Yeah, it sucks. Thank God for online buds. That's why we have each other. Why can't we all live near each other?????

    The one birthday party Kayla was invited to, she just sat in a corner and stimmed with a party hat. She only came out for cake, LOL.

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  6. I'm sorry you are hurting Kris. I wish there was something I could say or do to make you feel better. I think we are due for a girls night out..somewhere! :)

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  7. Anonymous1:10 PM

    You always fit in perfect with me and Daniel :)

    Love Lisa (DanielsMommy)

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  8. Hi Kristen,

    Thats rough. It must be really hard. I hope things turn around as the kids get older.

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  9. Anonymous4:13 PM

    I pray for you all daily. I pray for miracles of all miracles for Boogs. I pray for grace and understanding for everyone you meet, and will now add inclusion. I pray that this school year Ethan soars (even in a new environment). I pray that God opens all the necessary doors for Ethan's development and health needs. I'm sorry you're feeling this way; pray that it will pass quickly; and that God fills you all with overwhelming joy beyond your imagination.

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  10. I know exactly how you feel. We have the same issues with Mikey. It is hard for him to participate and it is hard for other kids to understand and appreciate him. He is too aggressive with other kids unless watched constantly and gets very frustrated when he isn't understood. We are lucky that my daughter's friends all love him so much.

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